It's been almost a year since my corneal ulcer and subsequent scarring. I'm still taking steroid eyedrops. My vision has improved more than I ever dared to hope it would, and my depression and anxiety have subsided.
When I was feeling absolutely distraught, I'd read and re-read some of the positive outcomes I found online; I found them comforting. That's why I decided to keep a record of them on this blog - I "collected" the information for myself, but made it public on the off chance that it might offer others some hope.
I think I read this so many times that I all but have it memorized!
I know every scar is different and people heal differently. That said, here's what I've found:
Glare
I still experience a lot of glare around lights. I get by fine in the daytime, but try to avoid driving in the dark whenever possible.
Pain
For the first few months, I experienced a deep throbbing pain behind my eye. It didn't help that my job involves a lot of reading. Usually by mid-morning, I'd be in so much discomfort that I'd need painkillers. That gradually diminished, and now I rarely feel pain behind my eye. (The only exception is if I'm experiencing a lot of glare from lights for an extended period of time, such as car headlights during long night drives - then the pain sets in.)
Fog
After my scarring, I had a sensation that everything was foggy. It was particularly bad in bright light, but I was aware of it in pretty much all settings. That's not the case anymore. I'm not sure if the "fog" cleared or if I've become used to it - maybe a bit of both. I really only notice the fog now when I'm outside on bright, sunny days - and sunglasses help tremendously.
Blurriness
My vision is still somewhat blurry in the affected eye, but it's nowhere near as bad as it was. The eyedrops I take can cause blurred vision, so decreasing the dosage over time may have something to do with the improvement. However, I do know that my scar has faded some. 10 months ago, I couldn't read a word on the computer screen with my affected eye. 6 months ago, I could sometimes read very, very slowly but would have to guess at a lot of the words. Now my vision is frequently clear enough to read standard 12 point font at a normal speed with that eye. I do notice that my vision in that eye fluctuates a lot and can still be quite blurry at times. I think it has to do, in part, with how tired I am.
Light Sensitivity
For quite a while, when I'd wake up and turn on the light, I had to keep my affected eye shut while it sloooowly adjusted. That isn't the case anymore. I can open my eyes "normally" in the morning now. Somewhere around the 6 month mark, I found I was even able to go outside without sunglasses (although I still prefer to wear them unless it's really overcast).
So basically, my only real complaint after sustaining a "small but deep" central corneal scar is glare from lights. It's a nuisance and I'm hoping there will be a fix for it someday, but until then, I can easily live with it. I can only speak for myself, but I think that - along with a qualified, competent medical professional's guidance, of course - patience is key.
Although my updates to this blog are slowing down as life is getting busier, I'll continue to post every so often. If you've found this blog because you have a corneal scar, I wish you all the best - remember that technology is constantly improving and medical knowledge is always expanding. Also, personally, I've found that the body's own healing properties can be quite amazing. All things considered, there's hope. Please don't forget that.
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Hello! Thanks for blogging about this. I can really relate - in the same situation. I try not to obsess about the loss of vision in one of the eyes (bacterial infection in Dec, ulcer, scar), but still very nice to read this and find out what other go through. Five months after this happened, my doc stopped steroids. Yours didn't. Interesting. Can you tell me more about the regimen you're on?
ReplyDeleteHow long since you had the ulcer? How is your vision now?
DeleteHi P.,
ReplyDeleteI'm still taking steroid eyedrops twice a week. I've been on them for 15 months now. If I remember correctly, I was taking them twice a day to begin with and gradually reduced the frequency. From what I've read, it does seem I've been on the steroid eyedrops longer than most people. I'm due to go back for another eye exam soon, so I'm expecting maybe I'll be told to discontinue the drops then (although that's what I thought at my last appointment a few months ago, as well).
As I've written on this blog, my vision has come a long way since this all began. I don't think my vision has improved in recent months, or if it has it's been so gradual that I haven't noticed. I'm hoping it's the latter! I still experience glare from lights and blurred vision, but it's at the point where I'm no longer constantly aware of it. I'm able to get on with life and have adapted pretty well.
Every case is different, but if I can offer you one bit of advice, it's be patient. Even six months after my scarring, I was still improving. Hopefully you'll continue to improve, as well. Good luck with your recovery.
Absolutely! We'll get through it. It's been 5 months for me. No longer on anything, steroids stopped. And whatever whoever says, I do believe that the scar is still a work in progress and will be dissolving! Like yours. Just a bit hard not to be doing anything for the scar. With steroids I felt like I was helping myself. Now I just do nothing, and so I'm seeking to do something for my scar, like maybe herbal compresses! There must be something one could do! But can't find any info anywhere. All in all, things are good. As you said, with time not only your scar gets better, but the whole perception gets better. My docs both said this, 'Brain is very powerful, it can rewire and adapt!'
ReplyDeleteHi P.,
ReplyDeleteJust checking in to let you know I'm still taking the steroid eyedrops twice a week. I'm surprised by how long I've been kept on them. That said, it's been quite some time since I've noticed improvement.
How are you doing? I think your positive attitude will be a big help to you. :)
I am Mhes, happily married with 3 kids. I am 30 years old. I had LASIK done on both eyes last September 8 of this year. And this has been the start of my ordeal. I had DLK on my right eye and was treated 1 week after the surgery. I had Predforte every hour and some other drops. DLK is now healed but left a central scar on my anterior stroma (cornea)-right eye only. I would just like to ask for another opinion since I already got a lot from different doctors and they are saying the same thing-that my cornea scar is very thin I know that I just have to be patient. I'm having difficulty with my everyday life now since I have blurred, hazy vision, starbursts, halos on my right eye. My work entails computer usage the whole day. I sometimes wonder how soon does a cornea scar heal especially when it's not thick (a very thin one according to my doctors, cornea specialists). Is it really possible that it will vanish overtime? I’m scared that it will not fade away. I'm young and everything's healthy and normal except for this scar. The thickness of my cornea was checked-normal and even the topography. I'm having PredForte 4x/day and Vigamox 2x/day and Duotrav and Maxitrol before I sleep. I hope that everything will be back to normal in the soonest possible time... I am praying very hard for this. I hope you can share some positive insights. Thanks. God bless.
ReplyDeleteMhes
How is your vision? Is your scar near your pupil?
DeleteThanks for the positive posts. As you say, every case is different but it's good to have cause for optimism. I'm 2 weeks into my recovery from a bacterial ulcer on the cornea. Around 2.4 X 2 mm in size, central but don't know about the depth. Vision is very foggy but I hope it will continue to improve.
ReplyDeleteHi Mhes,
ReplyDeleteI'm wish I'd seen your message sooner. How are you doing now?
For what it's worth, at the 6 month mark I remember thinking/worrying that my vision was as good as it would ever be. It improved considerably after that. I know how difficult it is to be patient - the anxiety was almost too much to handle some days. But in my case, time really did help.
Best wishes for your recovery.
Where was your corneal scar? Was it near your pupil please? Mine is and I am very worried if my vision will recover. Please can you advise me?
DeleteHow is your vision now and how did it improve since January, 2013?
DeleteCook, I'm so glad the positive posts are helping. Optimism is something I was definitely short on when my cornea was first damaged and the lack of information about what to expect was frustrating.
ReplyDeleteI experienced very foggy vision for the first little while. Little by little it went away (and to some extent, maybe I got used to it and became less aware of it). I'm still aware of it in certain lighting but it's nowhere near as bad as it was.
I hope you're doing well.
Hi,
ReplyDeleteI loved your blog...Its like a ray of hope at the end of a long tunnel. I recently (1 month back) got hit by a squash racket on my eye which has caused a scar near the center of my cornea. Unfortunately I was wearing specs with glass lenses that broke and entered my eye.
The scar isn't deep but quite irritating and I am encountering all the troubles mentioned in your blog.
I really hope that over a period of time I also start getting accustomed and the scar fades away. I also read about a research that is underway to remove corneal scars. Hope it sees the light of the day at the earliest. Posting the link here :
http://www.techtimes.com/articles/22055/20141213/stem-cell-in-eye-may-help-restore-vision-following-cornea-injury-infection.htm
Many thanks for this blog. This will really help in building some optimism.
Cheers,
Hello, I am so sorry to hear about your accident. I am certainly no expert and can only speak from my own experience, but my vision definitely improved after the one month mark. You're still in the early days, both in terms of healing and adjusting. I am also so glad to hear your scar isn't a deep one as I expect that might give you more treatment options in the future should you need them.
ReplyDeleteThanks for posting that link - isn't stem cell research absolutely amazing?! I haven't updated this blog in a long time, partly because I don't have much else left to say and partly because the scar doesn't disrupt my life anymore the way it used to. It's still there and still impacts my vision, but these days it's more of a minor annoyance than anything. But I am so happy to hear people have found the blog helpful. I remember all too well how distraught I was in the beginning, so I am glad if the blog can provide a little hope to someone in a similar situation.
Good luck to you in your recovery, I will keep you in my thoughts!
This blog was an interesting and helpful find. I suffered a corneal injury to my left eye in 2008 that has developed into a semi-central corneal scar. I say semi-central because when my pupil constricts in high to medium light, it does not enter my line of vision all too significantly (pokes in slightly enough to create a bit of glare). However when my pupil becomes dilated in low-light settings I begin to see the spectrum of visual disturbances outlined in this blog. I feel like a werewolf when nightfall descends; these strange ghostly overlays of distorted halos, glare, and light sensitivity all seem to creep out when the sun falls. Ultimately it's a pain, but it's become entirely livable over the years. I'm 22 now and looking into various surgeries to perhaps remove this nuisance. My ophthalmologist too recommended PRK surgery but it seems like such a crass way to treat a delicate organ; plus I've read a host of disconcerting stories about LASIK and PRK outcomes so I'm intent on exploring other treatments. Arun Gulani has popped up in my research but I get an odd feeling from him; something about him seems too intent on furthering his own name and brand. Check his "definitely not staged" testimonials on YouTube. Eeesh. I was very optimistic about his methods at first but the more I read the more I grow doubtful. Apparently the mitomycin C technique of washing the cornea after peeling scar tissue is a remnant of some archaic technique that still isn't corroborated by other corneal specialists. The IVIS treatment seems incredibly promising and, if the author of this blog still sticks around on here, I'd love to get in touch to discuss your research. I'll be meeting with a trusted childhood ophthalmologist and a corneal specialist I was referred to for PRK treatment within the next few months. If I learn anything new or perhaps go through with the procedure I will share my findings here. This is an amazing resource and afforded me (and I'm sure many others) a great deal of comfort. Thank you for sharing your experience.
ReplyDeleteThanks for creating this blog, I am so grateful you did so I can see what other people's experiences have been of their ulcers. I had a corneal abrasion and pseudomonas bacterial infection which caused my ulcer scar near partially over my pupil. It started on 13th January so I have now been undergoing treatment for just over two months. Could not see at all at first out of left eye, but gradually cleared, but not misty/blurry and get refractive glare in bright light. Have read that scar continues to heal from months 3-12 (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3597874/). Am finding the change of vision disorientating (I used to wear contact lenses but now have to wear glasses) and is badly affecting my nervous system. At first, had to put in antibacterial drops every half hour during the day and every hour at night (very stressful) for five days, then antibacterial drops every hour, and steroid drops twice a day. Stopped the antibacterial drops about a week ago and now putting in steroid drops every other day for two weeks then stop all drops completely. I can now read quite a few lines on the eye chart with my infected eye, whereas I could not see anything at first. I am impatient for my vision to improve. Please can you keep posting on this site so we can compare experiences.
ReplyDeleteMost of the posts on here are quite old. Please can we have some new posts apart from mine? I desperately need to speak to people going through this now.
ReplyDeleteThank god I found this post
ReplyDeleteHad infection due to my lenses
All my own doing
Started on steroids was expecting a miracle on first week
But it’s reassuring to know that this takes time
I hope everyone hear has improvement in the future eleanor
Corneal scarring Scarring from disease (usually an inflammation) is usually the result of a proliferation of new blood vessels into the clear cornea, to assist in the healing process.
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